news

Much needed update

Fri, 04 May 2012 01:48:36 +0100

So it's been awhile since I updated Mason's website. Pippi had to go back to 4 Paws for some additional training she will be coming home within the next couple of weeks!

Mason and Olivia were recently diagnosed with a rare genetic disorder called Glut 1 Deficiency Disorder, and we believe this is the cause of their seizures because it can cause Epilepsy. Olivia's seizures seem to be worse than Mason's he is doing really well. His doctor wants to see him go back to school next year so I think we are going to give it another try. He is very excited.

They both are going to have 24 hour EEG's within the next couple of weeks to see what their seizure activity looks like now. We tried the modified atkins diet for awhile but it didn't work for us, so we are going to maybe try some different medications.

Well I think that is about it for now, will post again soon.

Amy

Seizure monitors

Sun, 08 Jan 2012 01:01:37 +0100

We have been approved by a new non profit Fund It Forward to receive 2 Emfit seizure monitors for Olivia and Mason at no cost to us. All we had to do was apply. They will be having several fundraisers for other families that have needs for equipment that insurance will not cover, if you can support their cause in any way please do!!!

http://www.funditfwd.org/

Thanks
Amy

Pippi

Fri, 14 Oct 2011 13:55:17 +0100

Well we successfully made it through training for Pippi. She is a great dog, and fits in with our family well. She began alerting seizures within the first few days that we had her. We take her everywhere with us, she has been able to attend school with Mason a for a few hours a week. They are still working on bonding, Mason has special toys he uses when he plays with her, he has treats to get her to stay in bed. 4 Paws is an amazing place, and they do wonderful things for all these special kids, Pippi is exactly what we had hoped for, I can't thank everyone enough who helped in anyway throughout this journey, Pippi is truly an asset to Mason and Olivia!!!

Pippi

Wed, 07 Sep 2011 12:06:16 +0100

Mason is so excited he found out last night his service dog is a black lab named Pippi. She is all black and she is beautiful there is a picture of her on the first page. We leave for training on Monday only a few days away!!!!

SCHOOL

Wed, 24 Aug 2011 01:25:33 +0100

So here we are at the beginning of another school year. Mason is so excited about being in 1st grade. We just had his check up with the neurologist and everything looks good. We did have to increase his night time dose of Keppra he is having trouble sleeping and is really restless. We are about 20 days away from our trip, we should be getting our matches soon. We are so excited!!! thanks again to everyone who helped us get here.

Amy

Update

Tue, 05 Apr 2011 23:49:59 +0100

Well things are going well with Mason. He has adjusted to the new medication and his seizures seem to have slowed down. We are currently working on raising our travel expense funds, and that is going well. I am working on the video to send into 4 Paws and then we wait, and wait until September. It can't come soon enough! Please check back for more updates!!!

Thanks
Amy

New meds

Sat, 05 Mar 2011 02:42:59 +0100

So as a result of the EEG we had done in January that showed multiple seizures we made the decision to add a new medication to the Trileptal he was already taking. At first he was super tired and very cranky, he missed several days of school. He has been on it for about a month and 1/2 and he has adjusted. We go back to the neurologist next week. So far so good. Thank you for all the prayers!!

Seizures

Fri, 07 Jan 2011 21:17:35 +0100

Took Mason to the neurologist and they did an EEG. We found out that his is having a lot of seizure activity in several parts of his brain! The doctor said to expect Mason to have a grand mal seizure it is more than likely to happen. He has a lot going on when he sleeps so we will be making some changes at home until we get his seizure dog. We have to get blood work done and then go back and talk about adding an additional medication to help eliminate some of the seizures. I will keep everyone posted on his progress, please keep Mason in your prayers!!

WE DID IT!

Fri, 26 Nov 2010 23:16:30 +0100

Now that we have completed our fundraising requirement for 4 Paws we will travel to Xenia in September 2011. We are required to stay there for 10 days to complete training with Mason's new partner. We will be responsible to pay for all travels expenses, including hotel, food, and transportation. We will need to raise $5000 to cover those expenses.

School

Sat, 30 Oct 2010 01:29:23 +0100

Mason is doing very well in school, we have had a few behavior issues that we are working through. We have been lucky so far no seizures that have been noticed at school that we know of. I know there are a lot of kids in his class so I am sure he probably has had one it just wasn't noticed, which is ok he is doing ok not getting too tired. So far so good!

Amy